
Understanding the Challenges of Families with Special Needs Children in India
The recent heartbreaking case reported on January 25, 2025, in the Times of India, involving a software consultant and his wife, has brought to light the severe emotional and financial struggles faced by families with special needs children in India. Anup Kumar, 38, and his wife Rakhi, 35, tragically took their own lives after poisoning their two children, including their five-year-old autistic daughter Anupriya and their two-year-old son Priyansh. This shocking incident highlights the urgent need for societal awareness and support for families grappling with such challenges.
Financial Strain on Families
Recent studies estimate that about 1 in 100 children in India under the age of 10 has autism, while nearly 1 in 8 has at least one neurodevelopmental condition*. Families with autistic children often face overwhelming financial challenges. The average annual cost for autism treatment can be substantial, encompassing therapies, medical care, and specialized education. This financial strain can lead to feelings of despair and helplessness, pushing some parents to view their children as burden rather than individuals deserving support and love.
Misuse of Learning Challenges
My recent experience involving a referral for a learning challenge screening highlights significant issues within educational institutions. Parents reported that the assessment process was inadequate; their child was not evaluated comprehensively, and an Individualized Education Plan (IEP) was not provided despite clear signs of difficulties such as handwriting orientation confusion and social behaviour issues. Instead of receiving valuable feedback and support, parents were charged for services without being given any information about the generated reports or IEPs. This situation illustrates how some institutions may prioritize profit over genuine educational outcomes.
Parent Empowerment & Responsibility
Parents must take an active role in supporting their children’s needs without relying blindly on external institutions. Reading online about the symptoms, connecting with parent support groups, seeking help in online forum, paying close attention in understanding the child’s need and behaviour, are essential.
Collaboration between parents and educators is essential to ensure that children receive appropriate support tailored to their unique requirements. Parents should seek reliable resources and engage with professionals who prioritize their child’s well-being over financial gain.
Educational institutions need to become strong pillars of support by adopting inclusive education practices without imposing additional costs on families. It is crucial for parents to become empowered, ask questions, and actively participate in their child’s educational journey rather than following blindly.
A Call for Societal Awareness
This tragic event serves as a wake-up call for society to recognize the struggles faced by families with special needs children in India. Communities must create an environment of understanding and supporting parents and parents should feel encouraged to seek help, share their experiences, and advocate for better resources without fear of stigma or isolation.
Conclusion
Creating a more supportive framework for families dealing with autism and other learning challenges in India is vital. By raising awareness and encouraging responsible practices within educational institutions, we can work towards a society where every child is valued and supported in reaching their full potential. Let us come together to empower parents, improve educational practices, and ensure that every child receives the care and attention they deserve.
References:
* https://www.thetransmitter.org/spectrum/study-quantifies-prevalence-autism-india/